Community Corner
Rett Syndrome Research drug trial
My daughter, Katelin, has Rett Syndrome. She is a Barnstable High School student. She was recently accepted into a safety study for NNZ-2566, a drug found to help the brain recover, in Texas. she will be the 23rd person in the country o participate. 60 girls and women are needed. This could potentially be a game changer in the lives of children and ducts living with this devastating neurological disease. For more information about Rett Syndrome, please go to www.rettsyndrome.org and follow Katelin's Texas journey at www.trailtoatexastril.wordpress.com
You can watch her journey with Rett Syndrome here http://m.youtube.com/watch?v=jMsoA9x0eHs